My Whole Inspiration For This Mission

My daughter was born on the 24th of June 2025, now 10 months old, she is my joy, my happiness, and unfortunately, also my deepest sadness.

When she was just 2 weeks old, she started having seizures, while she was looking normal, some things seemed off, but we never thought that her story would unfold in this manner.

Fast forward to two months later, genetic testing came back, and the doctors found out that through me and my wife's DNA combinations, a genetic condition had formed in her, stripping her away of an important source of protein in her brain. This genetic condition, we found out that it's called WWOX Syndrome.

There are 2 different types of WWOX, Scar-12 and WOREE. Scar-12 being a milder version of the syndrome, while WOREE being the absolute worst of it, with life expectancy of a child being that of around 4-5 years.

Children who suffer from this type of condition, do not feed well, have difficulty learning the basic things, and onset development is very slow.

My deepest sorrow came, when I found out that due to this condition, she would never be able to talk to me, call me her father, or call her mother ''mother''. The best sounds in the world a human can hear, would be forbidden, while also not being able to communicate.

We felt like we had won the lottery, when we found out that only around 60 cases exist around the world, so we went deep into research to see how far this has gone, what remedies are there, and if this is even curable.

During our research, we found the WWOX Foundation, however, since we live in Malta, we thought it would be useless to register her, with a foundation so far away from us.

Deepening our research, we discovered that the parents leading this foundation, are working day and night, in order to fund the research and development of the cure, the basis of this, is to be able to inject the patients with ''WWOX'', the name of the protein creator which is dysfunctional in their brain.

Till now, studies are in phase three, where testing was successful on mice, however, they still need to start testing on humans.

The current medical funding model is broken and slow. I’m using my skills in design and storytelling to build a faster, more transparent alternative. I think I can make a difference in a space where meaning is lacking, and purpose is rare.

The daily life of parents with children diagnosed with these conditions, is very hard, and for the parents to have to push a big rock up a hill, alone, is heartbreaking. Hoping to find a solution to keep their children in this world, is something I can share very deeply.

My Daughter needs constant care, 24/7, medicine every 4 hours, she drinks from a pump and also suffers from bed sores due to the lack of movement.

This is my gift, to the meme coin space, a real story, with a true purpose, backed by a strong mission.

Let's make these parent's life a little easier, we trade senseless meme coins into oblivion, and I'm sure that through a collective effort, we can make a real impact together.

Every minute, is a golden minute, every hour, is a precious hour.